Expired Study
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Phoenix, Arizona 85013


Purpose:

The purpose of the Parkinson's disease Registry is to develop a national and international database of persons with Parkinson's disease (PD). The Registry will be used to facilitate the development of new therapies and healthcare services to improve the quality of life for people with PD. It will also be a means for investigators in the field of PD to quickly identify and notify subjects about other research studies for which they are eligible. Objectives include: - Assess current treatment approaches and develop best-practice guidelines - Track the functional abilities, access to healthcare and cost of illness of people with PD over time - Drive the development of innovative research projects - Accelerate the process of informing patients of research projects for which they may be eligible


Study summary:

What do you need to know? - Any individual diagnosed with PD is eligible to enroll. - Participation in the registry is voluntary, confidential and free of charge. - Eligible participants will be notified about opportunities to participate in clinical trials, though they are under no obligation to enter. - Participants will need to complete an updated questionnaire every six months. - Participants may also be asked to complete additional surveys for PD research projects. - Any data provided will be used in scientific publications in summary form only. - Participant names will not be released to anyone outside the Parkinson's disease Registry management team without written authorization, nor will names be sold for advertising or fund-raising purposes.


Criteria:

Inclusion Criteria: - Clinical diagnosis of Parkinson's disease Exclusion Criteria: - No clinical diagnosis of Parkinson's disease


Study is Available At:


Original ID:

03BN117


NCT ID:

NCT00217321


Secondary ID:


Study Acronym:


Brief Title:

Parkinson's Disease Registry of the Muhammad Ali Parkinson Center


Official Title:

Parkinson's Disease Registry


Overall Status:

Active, not recruiting


Study Phase:

N/A


Genders:

Both


Minimum Age:

N/A


Maximum Age:

N/A


Quick Facts

Healthy Volunteers
Oversight Has DMC
Study Is FDA Regulated
Study Is Section 801
Has Expanded Access

Study Source:

Muhammad Ali Parkinson Research Center


Oversight Authority:

United States: Institutional Review Board


Reasons Why Stopped:


Study Type:

Observational


Study Design:

Observational Model: Ecologic or Community, Time


Number of Arms:

0


Number of Groups:

1


Total Enrollment:

20000


Enrollment Type:

Anticipated


Overall Contact Information

Official Name:Abraham Lieberman, MD
Principal Investigator
MAPC

Study Dates

Start Date:November 2003
Completion Date:December 2015
Completion Type:Anticipated
Verification Date:September 2006
Last Changed Date:July 20, 2010
First Received Date:September 15, 2005

Study Outcomes

There are no available Study Outcomes

Study Interventions

There are no available Study Interventions

Study Arms

There are no available Study Arms

Study Agencies

Agency Class:Other
Agency Type:Lead Sponsor
Agency Name:Muhammad Ali Parkinson Research Center
Agency Class:Other
Agency Type:Collaborator
Agency Name:Barrow Neurological Foundation

Samples and Retentions

Study Population: Participants must be over 18 years old, have idiopathic Parkinson's disease diagnosed by a physician.
Sample Method:Non-Probability Sample

Study References

There are no available Study References

Data Source: ClinicalTrials.gov

Date Processed: November 18, 2019

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