Stanford, California 94305

  • Idiopathic Pulmonary Fibrosis, Interstitial Lung Disease


This registry will collect data on the strategies used to achieve a diagnosis of Idiopathic Pulmonary Fibrosis (IPF) and Chronic Fibrosing Interstitial Lung Disease with Progressive Phenotype (ILD) and the treatment and management efforts applied throughout study follow-up, clinical outcome events and patient reported outcome data. Blood samples will be collected periodically throughout the study for use in future research efforts. For participants with non-IPF, chronic fibrosing ILD with progressive phenotype, HRCT images will be collected throughout the study for use in future research efforts.


Inclusion Criteria: - Willing and able to provide informed consent - Established a new diagnosis of IPF by the enrolling subspecialty center (as defined by ATS/ERS/JRS/ALAT criteria) - Age 30 years or older, or - Diagnosis of a non-IPF ILD of any duration, including, but not limited to Idiopathic Non-Specific Interstitial, Pneumonia (iNSIP), Unclassifiable Idiopathic Interstitial Pneumonias (IIPs), Interstitial Pneumonia with Autoimmune Features (IPAF), Autoimmune ILDs such as Rheumatoid Arthritis (RA-ILD) and Systemic Sclerosis (SSc-ILD), Chronic Hypersensitivity Pneumonitis (HP), Sarcoidosis or Exposure-related ILDs such as asbestosis with progressive phenotype Exclusion Criteria: - Malignancy, treated or untreated, other than skin or early stage prostate cancer, within the past 5 years - Currently listed for lung transplantation at the time of enrollment - Currently enrolled in a clinical trial at the time of enrollment in this registry



Primary Contact:

Principal Investigator
Scott Palmer, MD
Duke Clinical Research Institute, Duke University

Rosalia Blanco
Phone: 919-660-0890

Backup Contact:


Location Contact:

Stanford, California 94305
United States

Susan Jacobs
Phone: 650-725-8083

Site Status: Recruiting

Data Source:

Date Processed: September 26, 2021

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