Clinical Trial 42189

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Study Summary:

New Type 1 Diabetes Registry Aims to Help Improve Treatment Options Through Online Research Initiative

T1D Exchange, a nonprofit research organization recently announced the launch of the T1D Exchange Registry, an online database of people living with type 1 diabetes in an effort to create the largest online cohort of individuals living with disease in the United States.

Working to Help 1nfluence the Future of Type 1 Diabetes

As part of the organization’s 1nfluenceT1D initiative, this pioneering research effort encourages those living with type 1 diabetes to share their information and own personal experiences in order to help researchers develop more targeted and effective approaches to treating and living with the disease. It will also be used to help inform other important healthcare issues, such as reimbursement and policy decisions.

“Longitudinal analysis is critical in driving meaningful diabetes research and innovation, and this project will provide a significant, publicly accessible way to study longer-term issues, such as the effects of aging and the progression of the disease,” said Dr. Wendy Wolf, director of the T1D Exchange Registry.

“T1D Exchange believes in giving everyone with type 1 diabetes a voice and the Registry enables everyone, regardless of where they live, with the opportunity to drive research and improve outcomes and quality of life,” she added.

How the T1D Exchange Registry Works

Participants take part in a brief, once-a-year survey, enabling researchers to learn more about disease management and progression, acute complications, glycemic control and utilization of health services.

The Registry is completely online, enabling individuals living throughout the U.S., including underrepresented populations, to share their personal experiences and data. In the future, Registry participants will also have the option to take part in additional research opportunities such as surveys or uploading health device data.

Registration is quick and easy, and there is no cost to participate. If you or a loved one is interested in taking part in the T1D Exchange Registry, please visit InfluenceT1D.com.

About T1D Exchange T1D Exchange is a nonprofit research organization dedicated to accelerating therapies and improving care for people affected by type 1 diabetes. T1D Exchange actively supports discovery and innovation through its biobank, patient data and biennial Diabetes Innovation Challenge. At the same time, the organization understands that evidence gathered in the “real world” can help bridge the gap between discovery in research settings and impact in people’s lives.


Study is Available At:

Learn About the T1D Exchange Registry
InfluenceT1D.com

 


Clinical trials are medical research studies designed to test the safety and/or effectiveness of new investigational drugs, devices, or treatments in humans. These studies are conducted worldwide for a range of conditions and illnesses. Learn more about clinical research and participating in a study at About Clinical Trials.