Clinical Trial 49876

NATIONWIDE


Summary:

<b>Huntington's Disease - Observational Study From Home</b>

PicnicHealth
HD research is lacking, so PicnicHealth is teaming up with Clinical Connection to help propel research and optimize care for those living with HD.

This is not a clinical trial. A traditional clinical trial involves testing a specific treatment, like a drug or medical device. In this research, we are only looking at data from medical records produced during your normal visits to the doctor. The goal is to better understand how patients across the US are being treated and why a disease looks different in different people.

Medical records help researchers learn:

  • Who is most at risk of side effects from certain medications?
  • How effective are new treatments over time?
  • What are the gaps in current treatments where new cures could be developed?

Who is eligible to join?

  • Diagnosed with HD (Huntington's Disease)
  • Received medical care in the U.S.

By signing up for this study, you agree to share your medical records with medical researchers. They will only receive records stripped of any information that could be used to identify you personally. Outside of that, no one—including your doctor or insurance company—will be able to see your medical records unless you choose to share them by clicking "Send Records" at the top of your PicnicHealth timeline.

After you sign up, you will also receive $200 and a free lifetime membership to PicnicHealth - so that YOU are the one in control of your medical records.


Available At:

CLICK HERE

 


Clinical trials are medical research studies designed to test the safety and/or effectiveness of new investigational drugs, devices, or treatments in humans. These studies are conducted worldwide for a range of conditions and illnesses. Learn more about clinical research and participating in a study at About Clinical Trials.