Summary:
PNH research is lacking, so PicnicHealth is teaming up with Clinical Connection to help propel research and optimize care for those living with PNH.
After you sign up, and your eligibility is confirmed, you will also receive
$250 and a
free lifetime membership to PicnicHealth -
so that YOU are the one in control of your medical records.
Who is eligible to join?
- Diagnosed with PNH
- Received medical care in the U.S.
How it works
1. Sign up in minutes
Answer a few questions about your medical care and which doctors you've seen.
2. We gather your records
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
3. Manage your health
Once we've digitized your records, access all of your records right from your PicnicHealth account - doctors' notes, test results, imaging and more.
4. Opt in to research
Your records are completely de-identified, then analyzed together with records from others.
A traditional clinical trial involves testing a specific treatment, like a drug or medical device. In this research, we are only looking at data from medical records produced during your normal visits to the doctor. The goal is to better understand how patients across the US are being treated and why a disease looks different in different people.