Summary:
Do you have a PNH diagnosis? If so, you may be eligible to join a 6-month, at-home, app-based research study!
Simply track your symptoms and treatments to help researchers understand the disease burden and treatment experiences for people with PNH.
About the study:
The PNH study aims to better understand the day-to-day experiences for those living with PNH by understanding the real-world experience. We look at how treatments impact your life overall, as well as collect real-time information on your symptoms and treatments. By spending a few minutes tracking what you notice about your health, you’ll help researchers understand what it’s really like to live with PNH so they can gain insights to inform clinical care and future research.
Who is eligible?
You may be eligible if the following apply:
- 18+ years of age or older
- A current US resident
- Have received a clinical diagnosis of PNH
Participants will be compensated for completing study activities.