Summary:
Chronic inflammatory demyelinating polyneuropathy (CIDP) research is lacking, so
PicnicHealth is teaming up with ClinicalConnection to help propel research and optimize care for
those living with CDIP.
After you sign up, and your eligibility is confirmed, you will also receive $75 in the form of an e-gift card and a free membership to PicnicHealth - so that YOU are the one in control of your medical records.
Who is eligible to join?
- Diagnosed with CIDP
- Receiving medical care in the U.S.
- Currently on treatment for CIDP for at least 3 months
- Not enrolled in an interventional clinical trial for a new CIDP medication at the time of
enrollment
How it works
1. Sign up in minutes
Answer a few questions about your medical care and which doctors you've seen.
2. We gather your records
Our team will collect and digitize your medical records at no cost to you. No uploads or appointments necessary.
3. Manage your health
Once we've digitized your records, access all of your records right from your PicnicHealth account - doctors' notes, test results, imaging and more.
4. Opt in to research
Your records are completely de-identified, then analyzed together with records from others.
This is not a traditional clinical trial where a specific treatment, like a drug or medical device, is being tested. Instead, this research focuses on analyzing data from medical records produced
during your regular doctor visits. In addition to medical records, the study includes assessments
and surveys to gain deeper insights into your experiences. The goal is to better understand how patients across the U.S. are being treated and why the disease presents differently in different individuals.