Summary:
Share Your Story to Improve Narcolepsy Type 1 Care
Have you or a loved one been diagnosed with narcolepsy type 1? Your experience matters — and it can help shape the future of care.
We’re inviting individuals living with narcolepsy type 1 to take part in a unique research project aimed at improving how care is delivered and how patients like you are supported. This is not a clinical trial — it’s a patient experience study where your story leads the way.
Why Join?
Make a difference: Your voice will directly influence research, innovation, and support programs for others navigating life with narcolepsy type 1.
Participate from home: Join through surveys, virtual interviews, or online workshops — all remote and on your schedule.
Get paid fairly and fast: Earn up to $120 USD per hour, with payments issued within 48 hours of completing each activity.
Who We’re Looking For:
- Adults (18+) diagnosed with narcolepsy type 1
- Located in the US or the UK
- Comfortable sharing their journey in English via surveys, interviews, or workshop
This project is led by Savvy Cooperative, a patient-owned platform that ensures patients are treated as partners in shaping better healthcare solutions.
Help uncover the real challenges, needs, and insights from living with narcolepsy type 1 — and get compensated for your time and expertise.