Summary:
Share your experience with cystinuria
Are you living with cystinuria, an inherited disorder causing kidney stones, or caring for someone who is? Your experience is critical—and it can help drive better understanding, treatment approaches, and support for others navigating this condition. We're inviting patients and caregivers to take part in a paid research interview focused on the real-world impact of cystinuria. This is not a clinical trial; it's a patient experience study where your insights lead the way.
Why Join?
Make a real impact: Your voice will directly inform research and help shape patient-centered solutions for the cystinuria community.
Participate from home: Complete a virtual interview at your convenience—no travel required.
Get paid fairly and fast: Earn $95 for your time, with payment issued within 24 hours of completion.
Who We're Looking For:
Adults (18+) diagnosed with cystinuria, or caregivers of patients with cystinuria
US residents
Comfortable sharing their experience in English
This project is led by Savvy Cooperative, a patient-powered platform that ensures patients are treated as partners—not data points. The insights gathered will help understand patient attitudes towards upcoming treatment options.
Your experience matters. Help illuminate the realities of living with cystinuria and get compensated for your time.