Summary:
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Protoporphyria is a rare genetic disorder that affects the production of heme, a component of hemoglobin. It causes a buildup of protoporphyrin in the blood, leading to skin sensitivity to sunlight, which can result in pain, redness, and swelling.
We are looking for patient volunteers to participate in a study to test the efficacy of a new medication for Protoporphyria. The medication will be provided at no cost to you or your insurance, and you will be compensated for your time and travel. Plus, if you refer a friend who qualifies, you’ll earn a $100 bonus.
Qualified Participants Must:
• Above 18 years old
•
Diagnosed of EPP or XLP
Qualified Participants May Receive:
- Compensation: Available to qualified participants
- Comprehensive Support: Regular check-ins and assessments to ensure your health is a priority. Our trial is conducted by experienced healthcare professionals dedicated to your well-being.
- No-cost medications: Study medication for Protoporphyria are given at no cost.